Showing posts with label attention. Show all posts
Showing posts with label attention. Show all posts

Wednesday, April 3, 2013

Diabetes requires adjustments for all members of the family

When a child is diagnosed with diabetes it undoubtedly will affect the entire family. Much attention is usually given to the child with type 1 to ensure proper diabetes management. But less attention is often given to the siblings of the diagnosed child. It is not uncommon for there to be feelings of neglect, anger and favoritism that arise in siblings.

Siblings can adjust to diabetes in their home if parents create a supportive environment that addresses the needs of all the children, not just the one with diabetes.
 
Here are some tips for parents on how to manage the responses of siblings to the changing family dynamic of living with diabetes.

Explain diabetes in terms they can understand

It is important that you clearly explain what diabetes is and how it works to each of the children in age-appropriate language. This will help calm fears and enable them to normalize the diabetes management process much faster.
 
For example, one of the big misconceptions that siblings often have after a brother or sister is diagnosed with diabetes is that they will “catch it.” They need to clearly understand that diabetes is not contagious and that close contact with their sibling is not dangerous. In fact, you can even emphasize that when the diabetes tasks are completed, it might be easy to forget that their sibling even has diabetes.

Look for opportunities to probe the feelings of your children

Initially, siblings adjust to diabetes with some intrigue, wanting to understand what it is about. But within a few weeks most siblings would like life to go back to “normal” before the diabetes came to live in the home. This causes a wide range of feelings in kids. The goal is to listen for these emotions and coax them out when appropriate.
 
For example, suppose your non-diabetic child says he also wants to have diabetes so he can spend more time with Mom and Dad. This type of comment is full of emotion. Rather than correcting your child and instructing them about the difficulties of having diabetes, focus in on helping them talk about their feelings. You might say, “Does it seem that your brother gets more attention from Mom and Dad because of his diabetes?” An inquisitive response that attends to the emotion your child is feeling sends the message that you want them to tell you more; you want them to express their feelings and you are willing to listen.

Make a point to talk about a wide variety of topics with children

Immediately after the diagnosis it is easy for diabetes-related conversation to dominate the household interaction. While this is understandable, make an effort to broaden out the topics to include areas of interest that pertain to all members of the family. This will not only help siblings to feel their lives are important but will also help the child with diabetes to see that there is more to life than diabetes.

Limit the amount of responsibility you give regarding diabetes tasks

While it is fine to ask for sibling help now and then with diabetes-related tasks, limit the responsibilities. For example, it is okay to ask an older sibling to periodically check the younger sibling’s blood sugar, but be cautious about making this type of responsibility a routine task. Diabetes is a difficult condition to manage and can be stressful, even for teens.

Be deliberate about nurturing each child’s needs

In reality, you may end up spending more time and energy addressing the needs of your child with diabetes than the others. But this doesn’t mean you can’t make adequate time for the other children as well. Show interest in their activities and challenges. Affirm their skills, abilities and efforts. Each child will have their own unique relationship with you. Nurture it by giving them one-on-one time where there is lots of conversation and fun. This is one sure way to avoid the problem of favoritism for the child with diabetes.
 
Source: American Diabetes Association. "Diabetes Affects Siblings Too.”

Sunday, March 31, 2013

Managing Type 1 Diabetes at School

Important Resources for School Staff

Type 1 diabetes requires constant attention—it doesn't go away during school hours. That's why it's essential that school staff, including teachers, bus drivers, and school health personnel, understand the needs of their students with type 1 diabetes to ensure that school is a safe and healthy environment.
 
More than 13,000 young people are diagnosed with type 1 diabetes each year.1 Because the disease is so common in young children, it's important that schools have at least some staff members who have a basic understanding of type 1 diabetes. Having a school worker on hand who knows how to check blood glucose, inject insulin, and choose an appropriate snack when blood glucose levels are low provides an enormous amount of security to parents.
 
Resources for Parents and School Staff
Children with type 1 diabetes rely on both parents and school officials to ensure that their condition is managed at school. That's a big responsibility for parents and school workers, but fortunately, there are resources available to help make your child's school conducive to managing type 1 diabetes.
Laws Protecting Your Child with Type 1 Diabetes
As a parent of a child with type 1 diabetes, you should be aware of the federal laws that protect your child at school. Below are brief overviews of these laws. The descriptions also include links to connect you to more detailed information.
  • Section 504 of the Rehabilitation Act of 1973 and Americans with Disabilities Act of 1990 (ADA): Section 504 prohibits schools who receive federal funds from discriminating against people with disabilities. Title II of the ADA prohibits schools from discriminating against people with disabilities, regardless if the school receives federal funds. Students with diabetes have long been covered by both Section 504 and the ADA. For a more extensive overview of these laws, visit the US Department of Education's Office for Civil Rights website.
  • Individuals with Disabilities Education Act (IDEA): IDEA provides funds to states to create special education services for children with eligible disabilities. Diabetes is one of the conditions listed under "other health impairment," and to qualify, a child's diabetes must negatively impact their academic performance to the point that he or she requires special education. For more information, visit the US Department of Education's Office of Special Education and Rehabilitative Services website.
  • Family Education Rights and Privacy Act (FERPA): FERPA prevents schools from releasing any personal information, including whether your child has diabetes, in your child's education record without the permission of a parent or student (if the student is 18 years or older).To learn more, visit the US Department of Education's Family Policy Compliance Office website.
Also note that specific states and individual school districts have laws and rules regarding a school's responsibility for its students with type 1 diabetes. Visit your state's education website and/or contact your school district to learn more about the laws and regulations that protect your child at school when he or she has type 1 diabetes. You can also contact your local ADA and JDRF offices for more information.